Patient Stories

Patient stories inspire our mission and drive our commitment to define, diagnose, and develop treatments for Lipedema.

Angelique

Anqelique faced discrimination her entire life as she tried to get medical answers. She said she felt like she was alone on her journey, but now she has found community.

Kasi

After sharing her Lipedema story publicly, it became Kasi’s personal mission to normalize conversations around personal health.

Hiba

Hiba shares her compelling journey of self-advocacy and healing, overcoming years of misunderstanding by the medical community.

Jeanne

By staying active, mindful eating, and doing things that make her feel confident, Jeanne has come to live and enjoy life with Lipedema on her terms.

Amanda

After a lifetime of not understanding why her body was different from others, Amanda’s research led her to a lipo-lymphedema diagnosis.

Becky

Becky emphasizes the importance of finding knowledgeable doctors who understand Lipedema and advises others to seek medical professionals familiar with the condition.

Juli

Juli was always involved in sports - despite having large and painful legs. Once she was diagnosed, she found treatment options that enabled her to resume her active lifestyle.